Hello, my name is Ariel Henley. I’m a writer in Northern California.
My twin sister and I were born with Crouzon syndrome — a rare craniofacial condition where the bones in the head fuse prematurely. Much of my work explores our experience growing up with a facial disfigurement. I share our story in an effort to help eliminate stigma, educate others about the importance of facial equality, and promote mainstream inclusion for individuals with physical differences. I also write to explore issues related to beauty, equality, human connection, and trauma. My work has appeared in outlets like The New York Times, The Atlantic, The Washington Post, and Narratively. I’m represented by Rachel Letofsky at CookeMcDermid.
My memoir A FACE FOR PICASSO is forthcoming from Farrar, Straus and Giroux in Winter 2021.
We can end discrimination against individuals with physical differences through education, exposure, and inclusion. Let us share our story at your school, work, or upcoming event.
In the media: Vice
Watch Ariel discuss Crouzon syndrome and the lack of mainstream inclusion for individuals with disfigurements in this segment for Vice's health vertical, Tonic.
In the media: Dear Sugars
Listen to Ariel chat with Cheryl Strayed and Steve Almond about how she came to terms with her appearance in this episode of Dear Sugars.