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Hi.

My name is Ariel. I write about growing up with a facial difference as a result of Crouzon syndrome. I'm also interested in issues related to beauty, equality, human connection, and trauma. Thank you so much for reading!

Hollywood should know better: You can’t tell evil just by looking || WASHINGTON POST

Hollywood should know better: You can’t tell evil just by looking || WASHINGTON POST

It is a privilege to see yourself and your identity depicted in mainstream media. I know this, because I never have. I have a facial difference as a result of Crouzon syndrome — a condition that caused my skull to fuse prematurely and that makes me look noticeably different from many others. And if people like me are represented at all, it’s not in a way that is a cause for celebration. 

This negative portrayal of people with visible physical differences stems back to Aristotle and ancient Greece, and has roots in physiognomy — a pseudoscience claiming a person’s physical appearance represents their moral character.

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How Fashion Lets Me Embrace the Physical Differences Caused by Crouzon Syndrome || ALLURE MAGAZINE

How Fashion Lets Me Embrace the Physical Differences Caused by Crouzon Syndrome || ALLURE MAGAZINE

Iris Apfel Is An Icon For All, But Even More To Me || CNN

Iris Apfel Is An Icon For All, But Even More To Me || CNN