All tagged Craniofacial Disorders
The first time a boy asked me out, it was a prank — a joke. A joke I found humiliating and heartbreaking. I was 13.
It took me years to realize that despite being born with a rare facial disfigurement, beauty is more than a cold calculation.
Living with a facial disfigurement can be challenging — the stares that last just a few seconds too long, the double takes, the rude comments. For a person struggling to accept their physical appearance, it can be hard not to let these things affect quality of life.
I have Crouzon Syndrome. Crouzon, like “crouton” with a “Z.” (That’s what I tell people that have never heard of it.) Crouzon Syndrome is a disease where the bones in the head fuse prematurely. I repeat this line often.