Hi.
My name is Ariel. I write about growing up with a facial disfigurement, as a result of Crouzon syndrome. I'm also interested in issues related to beauty, equality, human connection, and trauma. Thank you so much for reading!
My name is Ariel. I write about growing up with a facial disfigurement, as a result of Crouzon syndrome. I'm also interested in issues related to beauty, equality, human connection, and trauma. Thank you so much for reading!
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Children diagnosed with Crouzon syndrome require specialized care. The Craniofacial Center at Seattle Children's has an expert team of doctors dedicated to treating the whole patient - physically, mentally, and emotionally.
A nonprofit organization in Dallas, Texas, CCA is dedicated to addrssing the medical, emotional, educational, psychosocial, and financial issues surrounding craniofacial conditions. They also offer a free guide to understanding Crouzon syndrome.
Changing Faces is a London-based organization working to transform attitudes surrounding facial differences, and promote facial equality. They also help those with disfigurements find ways to live the lives they want.